Thursday, February 25, 2010

Nicholas' Stinky Day

Last Wednesday, February 17th, David got a call from Nicholas' school that he had thrown up and needed to be picked up. A few minutes later they called back to say Nicholas seemed to be zoned out and was possibly having a seizure so they had called the paramedics. The short version is that we spent the afternoon at Summit Hospital and the evening at Vanderbilt Children's Hospital. The neurologist ruled out most of the big scary things and the standard protocol was to start Nick on an anti-seizure medication and then follow up as an outpatient.

Nicholas took a day or two to recuperate from the ordeal and has been going full steam since then with no more seziures. We had our first appointment with the neurologist this afternoon and Nick has an EEG scheduled next Tuesday and a MRI on 3/11 (or maybe the other way around.) The plan is to continute on the meds for now then figure out a long term course of action after the tests are completed.

There are a few possibilties as to what the test results may show.
1. Absolutely nothing to indicate why Nick had a seziure. This would be frustraing but obviously our favorite option.
2. Scar tissue or some type of genetic or developmental areas that would most likely explain the seziure.
3. Least likely, but still a possibility, a tumor.

Regardless of the findings the suggested course will include finding the most effective dose of meds and continuing on them for two years. If he remains seziure free for 2 years then they would try to wean him off and see if he remains seziure free. If not the meds would be restarted. If it were #3 there would likely be neurosurgery involved, as well.

Please continue to keep us in your prayers as the Lord leads, and here are a few specific requests as well:
*Peace for all of us because it is easy to be fearful sometimes
*No more seziures, ever
*Financial provision
*Wisdom for everyone on Nick's medical team.
*Wisdom as we make medical decisions
*For Nick to know, beyond a shadow of a doubt, how much God loves him

Thanks to all of you who have supported us with your actions, words, time, finances, and prayers. It has been a blessing to remember that we are not walking through this alone. Much love to you all!

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